Association for Frontotemporal Degeneration, The

This information was last updated on
04/28/2017

Location

Radnor Station Building 2, Ste 320 290 King of Prussia Road Radnor, PA 19087

Telephone Numbers and Contact Information

Telephone 1:
(866) 507-7222 Toll Free

Telephone 2:
(267) 514-7221 Local

Telephone 3:

Fax:

Web Page: www.theaftd.org

Program Details

Hours: The toll-free phone line is not staffed; client should leave a message and someone will call them back
Eligibility: Caregiver must live with client. Individual with FTD cannot be under Medicaid or other program paying for respite care. Must provide documentation of diagnosis for FTD.
Fees: No fee
Intake Process: Submit application (available on their web site)
Service Area: US or Canada

Program Description:

FTD, also called frontotemporal dementia or frontotemporal lobar degeneration (FTLD), is a disease process that causes a group of brain disorders characterized by changes in behavior and personality, language and/or motor skills, and a deterioration in a person's ability to function. The AFTD provides information about FTD to patients, families, physicians and other health care providers, and promotes and funds research. The Comstock Caregiver Respite Program is a grant program to help full-time, unpaid or family caregivers living with someone diagnosed with frontotemporal degeneration pay for short-term, daytime or overnight respite care. To apply caregivers must submit a simple application along with medical records documenting how the diagnosis of FTD was made. Once approved, caregiver arranges respite care and submits receipts or documentation to AFTD for reimbursement up to the total grant amount of $500. AFTD will work with applicants to obtain the documentation needed to qualify for a grant and request reimbursements. Once approved, caregivers may re-apply for one $500 grant per AFTD's fiscal year, without submitting any additional medical records, for as long as respite care is needed.


This information is provided as is with no guarantee as to the accuracy of the information. Information is considered to be accurate as of the date of the last update, printed above. Resources for Seniors may not be held liable for misuse of this information.